Not sure exactly where to begin this post, not sure what to write. The events at this appointment left me stunned.
Emma had another x-ray and we saw the Registrar first. He asked how Emma had been, I am thinking how do I tell them of my concerns, what the physio had said. So we begin, Emma is OK in herself but she has really crap abduction, physio measures it at 5 degrees. He examines Emma - lets view the x-ray. It doesn't look good to me. Much more flattening like the cross-section of a fried egg, the outer edge looked like it was extruding and fragmented. The consultant is called, at first dismisses the poor abduction but the registrar confirms. He then looks at her scar area - muscles and tendons have returned to original position.
What to think!
Brace failed to do its job, were we not looked after?
Conclusion
Refer onto the Perthes Gurus. Repeat operation, wear brace in meantime. Her head is at risk. Bye bye.
Hard to keep smiling for Emma.
At the time of Emma's diagnosis, we did not find many other children or contacts within the UK who were in the same Perthes boat. We decided to keep this diary and hope in time it will help others.
Monday, April 6, 2009
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