At the time of Emma's diagnosis, we did not find many other children or contacts within the UK who were in the same Perthes boat. We decided to keep this diary and hope in time it will help others.

Saturday, September 13, 2008

12th September appointment

This was our third vist to the hospital since Emma's diagnosis. We were told at the last appointment two weeks ago they would repeat x-rays. In fact there was just the one taken. We had to wait a while as the doctors hadn't signed the x-ray forms! We saw a registrar first who showed us the new x-ray. Her left femeral head showed further flattening, it looked roughly a little under half the height of her good hip and was just beginning to peak out from the socket.

There are no further fractures, however, so that was good. It was the first time my husband had seen them. Obviously he was surprised by what he saw.

The doctor said how her hip was still vulnerable and beginning to fall outside the socket. It was not in the best position and he thought maybe a brace or crutches would be needed and he’d speak with the consultant. The consultant examined Emma’s ROM and was still concerned about the contracture. He decided she no longer needed the three doses of Nurofen (Ibuprofen) but to give one dose after the evening meal. He felt the Ibuprofen may possibly be masking any problems.

He is still against broomstick plasters and other forms of bracing and how awful they are for a child. He explained his experience comes from studying in the US, Europe and UK and would not offer Emma much benefit as the important things were a good diet, keeping mobile, exercising – swimming, not running or jumping basically allowing the body to remould. He also explained the need to keep the synovial fluid in good health, as this was important to keep the cartilage healthy. However, if she should suddenly be in a lot of pain to rush her back in – I’m guessing here he means if her hip displaces!

The next x-rays will be six weeks. He also mentioned home traction – we realised he hadn’t remembered anything about Emma and that she had been in traction. He decided if Emma could put up with it, to put her in traction every night. Emma is not happy about that! We decided we will give her some time off now and again.

We are still unsure to what stage she is at or to what category she is in. The registrar suggested 50% involvment and grade 2 but we are not sure if he was referring to a particular grading system or the stage she was at. Unfortunately the NHS doesn't give you much time. We still have a long road ahead of us, so it maybe too early to tell in any case.

Wednesday, September 3, 2008

Extra swimming lessons

As swimming is one activity that Emma can still do and is encouraged to do, we enrolled her into another swimming club for some extra lessons.

Emma went to her first lesson on Monday, she was moved up to the next class as there was more room with just one child. The coach said she wanted to give her more room so that she wouldn't be accidently kicked by other children and she is able to cope with the deep water.

At the end of the lesson, the teacher gave Emma a slip of paper. She'd been awarded Grade 2 Water Skills! Not bad for her first lesson at the new club LOL!